Mon. Dec. 18th

Sorry for not writing in the blog sooner but we are having some technical difficulties with our computer.

Last week she had chemo and it was quite a rough week with joint and muscle pain throughout her body. Not to mention trouble sleeping. We were back down last Thursday for the Gallium and she has been having trouble with her one toe or which we thought foot. She's now on antiobiotics but we're not quite sure what the problem is, first they thought ingrown toenail but we realized she got stepped on a few weeks ago and that's when it all started so it could be anything right about now. We were back down today for a check up and she lost .1 kg which is good considering they thought she'd lose some weight last week because of the chemo but .1 of a kg isn't much. Both her CT scan and Gallium tests have come back clear, hurray!!!!!!!!!!!!!! She will still be doing chemo for a year but she is responding well to the chemo. Her counts have been good and she doesn't have to go back until Wed. Dec. 27th for a follow up appt. and than back Jan. 2nd for her next round of chemo. We are so proud of her and her progress and Josh and Jamie have also been amazing throughout this whole ordeal, it's been hard on the whole family but they've been super!

We still appreciate everyone's blog messages and cards and we thank god for our wonderful support system.

Love

Michelle

PS Yes Colline Meghan is on the 8th floor in clinic, it's called 8D.

Mon. Dec. 11th

Sorry we were having computer troubles so that's why I haven't written for a few days.

We were back down at Sick Kids today, and what a long day it was. We had to be there for 8:45 a.m. First we registered and than they sent us to ultrasound at 9 where I had been told no food or drink after midnight which we didn't but when we went for the ultrasound finally around 10 she told me we were suppose to have drank for that ultrasound so Meghan drank 2 cups of water and waited so than she took us back in about 20 minutes later and it still wasn't full enough so she drank 2 more drinks and waited 40 minutes and finally she had a proper ultrasound. We then headed back upstairs at 11:30 to go to clinic for chemo where we waited to be called for her weight and of course she gained again, hooray! We than waited for the doctor (our doctor was away so we had the fellow or resident doctor and our nurse was away too) to come and go over everything and wait to be called for the nausea meds which she had at 1:15 and than you have to wait a 1/2 hour before the chemo meds but we had to be back down to have the contrast injected at 2 so we went there first and than back up for the chemo and in the meantime I told Joe to go and put our prescriptions in downstairs at shoppers so when she's done chemo they'll be ready for pick up, wrong. When she was done at 3 we headed down and they had to wait for the doctor to call and we FINALLY got our meds at 4:30 and headed home. Shortly after we arrived home I realized they forgot a drug so I called the fellow on-call and they phoned in the prescription and I went and picked it up at our local drugstore. At 9 when she took all her meds she vomitted them all up, so we had to give her nausea meds first and than wait and give her other meds over but slowly. Needless to say we are both exhausted but more Meghan I'm sure.

We are back down Thursday for the gallium at 8 a.m. (that should be fun) and than back on Monday for the results.

Other than that we're hanging in there :)

Michelle

I've attached a picture of Meghan, Sam & Isabelle on Santa's lap for about a week ago.

Wed. Dec. 6th

We were back down at Sick Kids today for a CT scan and we'll get the results of that on Monday when we're back down for chemo, they had a hard time getting blood, as usual the poor kid and she never complains. When we're there on Monday for chemo she will also have the contrast injected for the Gallium which will take place next Thursday morning. We still have the nursing coming but they are about every other day and physio is still twice a week as she is having a problem with her left foot still.

Other than that she seems to be feeling better when it comes to the joint and muscle pain but that was caused from the chemo which will probably be back next week when she's back on the drugs. We have bought her a foot spa and that really seems to help relieve some of the pain in her foot, for a short period of time anyways.

Michelle

Tues. Dec. 5th

I'm sorry everyone for not writing last week, I was still absolutely speechless after the fundraiser but I know many people have been asking what's going on so here's the scoop.

Last week was a fairly good week. We went out Thursday and we took the wheelchair but she walked most of the time but when we got home she was exhausted and her legs were swollen and she slept till 11 the next day. Josh and I took her to Scarborough town on Saturday and she stayed in the wheelchair the whole time and Josh pushed her which was much better as she just enjoyed getting out.

We were back down at Sick Kids yesterday and her weight has gone up and they were thrilled and so were we of course because they thought they were going to have to use a feeding tube, g tube or hospitalize her if she didn't gain any weight and she was over what they wanted, hurray! She starts chemo again next week and they figure she'll go down again so that's why they want her weight up. She's still having joint pain in her feet which is making it very uncomfortable for walking and physio but the codeine is helping.

Sorry again for not blogging but everything is good right now and let's just keep our fingers crossed.

Michelle