Mon. April 30th

Yes I realized after I sent the blog on Friday that the link didn't work for some reason. We are called Meghan's Team and I'm the team captain, Michelle Carson, you can just go to sponsor a team. Let's try it again, I hope it works!

https://secure.e2rm.com/registrant/startup.aspx?eventid=10521 or
https://secure.e2rm.com/registrant/LoginRegister.aspx?EventID=10521&LangPref=en-CA

Fri. April 27th

Back down we went to the hospital this morning to check her counts and they are down so we have to avoid crowds, I called the school to tell them she wouldn't be there this afternoon and she was mad that she wasn't allowed to go, but that's the way it works. She has been confirmed for Wed. May 2nd for her surgery to remove her port. We arrive at 9 and the surgery is scheduled for 11 and than once the surgery is over it is a 4 to 6 hour recovery on the 4th floor, that is if her counts are up because they won't do the surgery if there not up. We are also scheduled for chemo on May 4th.

Jamie, my mom & I are participating in the 5km Meagan's Walk on Mother's Day starting at Ontario Place and ending at Sick Kids with a human hug of the hospital. https://secure.e2rm.com/registrant/startup.aspx?eventid=10521 We have formed Meghan's Team, it is not the same type of cancer as Meghan has but it for a great cause and it's something Jamie, my mom & I can do together on Mother's Day. Meghan is not up for the walk up so she will stay home with Joe.

It's nice to see all your comments again, from my regulars and new ones. I know there was a problem for awhile there, but it's still nice to know that people are still checking up on us. I'm sure I've aged during the past 7 months.

Thanks again to all of you!

Michelle & family

Mon. April 23

We were down at the hospital on Friday and her counts were great. She is tentatively scheduled for surgery on May 2nd for the removal of her port. They are hoping to not have to put a new one in and just go directly through her veins in her hands. They want us back down this Friday to check her counts again. She has started feeling a bit better since the chemo a few days ago, usually it takes a couple days after chemo is done before she starts feeling well again. We were thrilled that they stopped her BP mediation because it has been good and stable, but I still need to keep an eye on it daily. It has been very strange because besides chemo weeks she has no meds during the week, she still has an antibiotic on Friday's, Saturday's & Sunday's while she's undergoing treatment.

We hear that people are having problems with leaving blog messages, that's fine we understand, we know that people are reading it so I will keep writing.

Thanks again to everyone.

Michelle

Friday the 13th (what does that tell you?)

Well another fun day at the hospital. We arrived around 9:45 for our 10 am appt. and her weight was up another kg from last week, she's still not back to her original weight but almost. Her counts were good so away we go with chemo. We went downstairs to put the medications in as it takes a while for them to be filled and the chemo still wasn't up yet, so our nurse Krista told us to come back to the IV room when we're done dropping off the prescriptions, but there was only one chemo up so we decided to access the port, just in case there was no blood return, and as she was pushing the saline through the port Meghan was saying that it hurt and her neck started swelling and Krista asked if this has ever happened before and I said no, so she stopped right away and went to speak to her nurse and they wanted us to have a lineogram, where they check her port, so they gave chemo through the hand and we waited until 3:30 and headed downstairs to the IGT room where they did an ultrasound on her port at her neck where they saw her port had come out of her vein. She did have the chemo but now we have to wait for an appt. to have surgery to remove her port. We're not sure if we're going to put the port back in or just put the chemo through the hand. We are scheduled to go back down next Friday for blood counts. Hopefully they won't see us before that for anything else, except maybe the surgery. Meghan said they better put her out for the surgery or she's going to slap someone, she's hilarious.

Here is a picture Meghan and Krista today in the IV room.

Michelle

Friday, April 6th (GOOD FRIDAY)

Yesterday was another day at Sick Kids for chemo but Meghan's polys were low, which didn't surprise me because she's looked really tired this week. So at 11 am we were on our way home, it's too bad because it wasn't busy there at all yesterday when we first arrived and I thought we'd be out early for a change. So we'll be heading back down next Friday for chemo and hopefully her counts will be up again.

Meghan's weight has gone up again which is great, her appetite is back, the prednisone is working.

Meghan says "Hi"!

Oh and they've been trying to talk Meghan into going to Camp Oochigeas in the summer which is a camp for kids with cancer and she has been dead set against it and she actually took the papers and started filling them out, I can't believe it.

Thanks again to everyone for all your messages and well wishes we appreciate each and everyone of them.

Michelle
I hope you all have a Happy Easter!

April Fools

I don't know if any of you listen to or did listen to mix 99.9, 97.3 easy rock or CFRB the past few days where they were doing a radiothon from Sick Kids but boy did it bring it all back to me, listening to the parents talking about there experiences that they had a had at Sick Kids and what an amazing hospital it is. I know that I can not say enough wonderful things about Sick Kids. I also felt, strange as it may sound that Sick Kids was for kids that were really sick and I have never used it before Sept. 2006, but I wouldn't for a moment hesitate to go there again for anything or to recommend it. I heard someone on the radio say that there are very special people that work there and I truly believe that too. The people that we have met and grown to know all too well, go above and beyond their call of duty and I will never forget what they have done for us and the support they have given us. My grandmother and I were talking about all the scary moments we had over those 7 weeks and I said it has changed mine and my families life forever!

On another note, Meghan is down to 2 seizure pills a day from 6 and she will be done them in less than 2 weeks, she is still on 1/2 a blood pressure med a day and also an antibiotic 3 times a week. But she has come so far in the last few weeks, she's been out walking around the neighbourhood with her friends and she went to the movie yesterday with Jamie, Sam & Kelsie which is a big step. I'm slowly starting to let go which she wants and I'm trying to do. We didn't go down to the hospital this week at all and she made it all week at school except she only went to one class on Friday, amazing! Next week she's back down at Sick Kids on Thursday for chemo. She looks great, she's feeling great, especially the non chemo weeks and she has her sense of humour back. We were at the hairdressers on Friday and meghan showed her her hair and she couldn't believe how much she looks like Josh with the short hair so when we got home I took a picture of the 2 of them so if she'll let me I'll down load it from the camera and put it in the next blog.

Thanks again to all of you for your love and support, we appreciate it!

Also I would like to say that we have 11 friends or family members affected by cancer right now and we are also praying for each and everyone of them everyday! Our love and prayers to all of them and their families.

Forever grateful,

Michelle